We are proud of our Pedmed-NL partner VSOP (Vereniging Samenwerkende Ouder- en Patiëntenorganisaties) for their help with the first patient consultations within conect4children. Pedmed-NL and those involved in the advice were very grateful for VSOP’s active contribution in identifying suitable parents to participate in the advice. Because of this we were able to let good, important patients participate in the conect4children advice. VSOP is the umbrella organization for rare and genetic diseases in the Netherlands. See also their website: VSOP and their role within c4c: link.
