If you are involved in an expertise center for a rare disorder that manifests itself at a young age, VSOP hereby offers you to participate in the development of an advanced website for the disorder. The websites will contain extensive information on the research and care offered by the center, for both (parents of) patients, as well as care providers and referrers. Such websites can be developed for six disorders, in which several expertise centers, or one center and treatment centers, present themselves together. There should also be cooperation with the relevant patient organization. The website becomes the property of the center(s).
The VSOP has already developed several similar websites in cooperation with about ten expertise centers and with support from the Innovatiefonds Zorgverzekeraars.
The current Expertise Connected project is funded by the Stichting For Wis(h)dom.
On Tuesday evening, February 16, at 19:00, VSOP is organising a digital information meeting for interested expertise centers and patient organizations. Through this link you can register and you will also find extensive project information and conditions for participation. If you would like to contact VSOP, you can send an email to email@example.com.