If you are involved in an expertise center for a rare disorder that manifests itself at a young age, VSOP hereby offers you to par...
ANGELINI FOR FUTURE 2021 - Supporting independent research in rare diseases. Are you a researcher in a public or private non-pr...
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From 21 December till 4 January the office of Pedmed-NL is closed....
Op woensdag 9 december van 19:00 – 21:00 uur organiseert de Patientenfederatie Nederland samen met Stichting Kind en Ziekenhuis...
We are proud of our Pedmed-NL partner VSOP (Vereniging Samenwerkende Ouder- en Patiëntenorganisaties) for their help with the fir...
For the KD-CAAP study the first site is open for patient recruitment into KD-CAAP Study. Dr. Paul Brogan, KD-CAAP study sponsor,...
The Enpr-EMA has released a document on preparedness of medicines' clinical trials in paediatrics. The full article can be found h...